The face goes before the feeling
You walk in and your mother looks at you with distant warmth, the way you look at a pleasant person whose name escapes you. It is one of the most painful parts of dementia — and one of the most misunderstood.
In the brain, recognition of a face and a name goes long before recognition of a feeling. Your mother may not know you are her son and know perfectly well that you are someone safe, someone who does her good. That part stays lit when almost everything else has gone out.
The question never to ask
"Mum, do you know who I am?"
It is the question nearly everyone asks, and the one that does the most damage: it puts her on trial, she feels she has failed without understanding why, and the visit starts in distress. Introduce yourself as if it were the most natural thing in the world: "Hello Mum, it's Mark, your son — I've brought your favourite biscuits." No quiz, no test.
Do not correct her reality
If she says she must collect the children from school, or that her mother is waiting, contradicting her ("Mum, Granny died thirty years ago") does not bring her back to the present: it makes her grieve again, each time as if for the first time.
It works far better to step into her time and move her gently: "The children are sorted, Anne saw to them. Come and sit down, I've brought biscuits." That is not lying; it avoids suffering that achieves nothing. The working rule is to answer the emotion, not the fact. If she asks for her mother, she is almost certainly looking for comfort, not information.
What works better than words
When conversation stops holding, the visit is not over — it changes shape.
- Hands. Holding hers, hand cream, filing her nails, brushing her hair. Touch reaches where words no longer do.
- The music of her youth — her late teens and twenties. Musical memory is remarkably durable: people who no longer speak sing whole verses.
- Doing something together rather than talking: folding towels, podding peas, looking out of the window and commenting, walking the corridor.
- Old photographs, not recent ones: distant memory lasts longest. Write the names on the back.
- A taste from home: one specific flavour opens memories that questions never will.
- Silence together. Sitting side by side saying nothing is a complete visit. You are not there to entertain her.
When to come, and for how long
Short, frequent visits beat long, rare ones: half an hour every couple of days beats four hours on Sunday. And choose mornings or early afternoon where you can — agitation builds late in the day, which is sundowning: wandering and sundowning, what actually helps.
If she gets angry, or wants to go home
Do not argue and do not defend yourself: aggression in dementia is nearly always fear, pain or too much stimulation — not malice towards you. Lower your voice, slow down, take noise away. If she asks to go home, avoid "this is your home now": try "we'll see about that later, let's have a cup of tea first." "Home" is often not an address — it is the feeling of being safe, and you can give her that where she is.
Leaving
Say goodbye simply and always the same way, without drawing it out: "I'll be back on Wednesday." If leaving distresses her, ask staff to involve her in something just as you go — it is an ordinary request and every home does it.
What genuinely consoles
She will not remember that you came. But the mood you leave behind lasts hours — care staff see it every day. A forgotten visit is not a wasted one: it is a better afternoon for someone who has few of them.
Ask staff how she is after you have gone. That question will tell you, better than any memory, whether you are getting it right.
If the home makes visiting hard
Something families underrate: some homes make a good visit impossible — nowhere quiet to sit, no garden, a television at full volume, staff who tell you nothing. If every visit is a fight with the surroundings, it is not you doing it wrong.
Curalune Care Help (£69) puts together, usually within 24 working hours, a shortlist of 3 to 5 homes that fit — with the questions to ask about family space, gardens and secure dementia units.
*General information, not medical advice. Any sudden change in behaviour should be checked by a doctor: in older people a urinary tract infection often shows up as confusion alone.*
